We wanted to share Colt’s diagnosis in a way that let people know that we celebrated our wonderfully made boy with his extra chromosome.
It has been almost 4 years since Jim and I together wrote Colt’s birth announcement, but the emotions still come flooding back every time I read it...
“We wanted to take a minute to share an update with you on our newest member of the family, Colt. Turns out our little guy has been gifted with an extra chromosome, otherwise known as Trisomy 21 or Down syndrome…. This changes nothing for us in our mind. Psalm 139 hasn’t changed. Colt is just as fearfully and wonderfully made by our perfect Creator as our other five children so why should we feel any different? God didn’t make a mistake when Colt was being ‘intricately woven’ and ‘knitted together…’’(Complete letter below.)
I remember crying while writing these words, not in grief, but in the realization of what a special gift we were given and just how much God was going to use our boy to impact our lives and this world.
I could have never begun to imagine just how soon and how greatly this extra special boy would change us though.
***Part 5 in next post on his 4th Birthday!!***
•Our Announcement Letter:
July 29, 2014... Hi Friends, We wanted to take a minute to share an update with you on our newest member of the family Colt. Turns out our little guy has been gifted with an extra chromosome, (otherwise known as Trisomy 21 or Down syndrome).
We sort of knew this soon after Colt was born when we saw his precious face that revealed one characteristic of down syndrome which is the adorable up-slanted almond eyes. He also didn't cry in the first 24 hours aside from a diaper change, which we also knew wasn't "normal". After a quick search on the internet we learned that many babies that have down syndrome do not cry very often. So this also began to confirm our belief that he could possibly have down syndrome.
When the midwife came back the day after the delivery for Colt's 24 hour check-up, she asked us if he looked like our others, we told her, "well yes, his older brother but with down syndrome". She was caught off guard as she didn't think that we had noticed nor did she realize that we would be just as happy with this possible diagnosis. She then confirmed to us that she also thought that he possibly had down syndrome.
We told her that it changed nothing for us in our mind. After all, Psalm 139 hasn't changed. He is just as fearfully and wonderfully made by our perfect creator as our other five children so why should we feel any different? God didn't make a mistake when Colt was being “intricately woven” and “knitted together”.
Last week Colt was seen by a pediatrician and a genetics doctor who both confirmed that Trisomy 21 was an accurate diagnosis. The last step was waiting for the results of his blood test which we received yesterday morning from genetics lab giving the final confirmation of the diagnosis that we felt we had already known since the day he was born.
We are praying that God will be glorified as we get the opportunity to share with our friends and family why we are just as thrilled and have just as much joy with Colt as with our five others (who as you know are not perfect and also come with their own little package of health and behavior issues that just so happens to not be given a packaged title or cute physical traits that might define their issues into a specific group).
As we were watching all of our kids cuddling Colt and doting on him and Luke carrying him around singing to him, Jim said, "well he couldn't have been born into a better family to always have someone loving on him and taking care of him :)"
Even though we know he'll be a greater gift to us than we are to him. Really it's not about him or us but just that it is an opportunity for God to be glorified and we are so grateful for that. We also know that there will be some unique challenges ahead but we have faith in our perfect Father and praise Him for another amazing gift in Colt!
Love, Jim and Kelsi